Our Arrhythmia Care Coordinator (ACC) programme provides evidence for how this professional role can help to improve quality of care for the two million people with arrhythmias or heart rhythm problems in the UK.
Atrial fibrillation increases the risk of stroke by up to five times and, in severe cases, some cardiac arrhythmias can result in sudden cardiac death.
These conditions – which include atrial fibrillation (AF), tachycardias and bradycardias – are among the most common reasons for hospital admission, with patients suffering both psychological and physical effects.
AF is the most common sustained adult cardiac arrhythmia in the UK, and costs the NHS more than £2.2 billion each year.1 Currently, over 1.3 million people have the condition, with an estimated 400,000 thought to be undiagnosed.
With the right care, treatment and support, many people with arrhythmias can get back to living a normal life. However, there has been a missing link between diagnosis and patients feeling supported to really understand their condition.
AF prevalence increases with age, and is present in more than 15% of those aged 75 years and over
Source: NICE (2014) AF Guidelines CG180 [6]
15,830 strokes in the UK could be avoided over three years if everyone with AF were diagnosed and received appropriate anticoagulation therapy, according to estimates
Source: BHF Analysis based on Public Health England's Size of the Prize [2]
Our independent evaluation of ACC services in 2010 showed that these posts significantly improved patients’ experiences of services. They prevented more than 4,200 re-admissions a year during the pilot and cut NHS costs.
ACCs provided a single point of contact for patients, coordinating care and performing diagnostic tests, clinical interventions and follow-up outpatient clinics. They also increased awareness and identification of AF through a local audit and the use of validated tools.
Around 400,000 people in the UK have undiagnosed AF
Source: Public Health England (2018) AF: How can we do better guide [3]
What we did
The National Service Framework recommended that patients with long-term conditions should have access to a named ACC to help them manage their illness. Our three-year pilot programme funded 32 ACCs in 19 NHS trusts across England and Wales. The nurses were recruited into primary, secondary and tertiary centres.
Role and responsibilities
Where pre-existing arrhythmia services existed, ACCs redesigned care pathways to improve integration. Where there was no service, ACCs developed one.
ACCs ran nurse-led clinics, ordered patient tests, developed care pathways, made diagnoses and reviewed medication in conjunction with a consultant. They supported and counselled patients, and educated other healthcare professionals about arrhythmic conditions.
Crucially, the nurses also gave out their contact details so that patients could ring with any health worries or problems. Instead of rushing to A&E, patients could turn to their ACC when frightening symptoms returned.
Five vital functions
Preventing illness – ACCs diagnosed AF, potentially reducing strokes.
Monitoring AF – involves planning the patient care pathway and prescribing medication.
Managing cardioversion services – ACCs undertake pre- and post-procedure clinics, patient assessment and titration of anticoagulation therapy prior to performing direct current cardioversion.
Providing patient education and support – for instance, they explain to patients with implantable cardioverter defibrillators (ICDs) what physical activity is safe, what to do when the device fires and give practical advice on travel and insurance.
Joining up patient care – ACCs are a specialist resource for GPs, healthcare professionals, patients and carers. They help to ensure a co-ordinated approach to integrated, holistic patient care.
What we achieved
Better patient care
1,680 patients experienced 844 fewer readmissions in one year as a result of ACC interventions
ACCs helped to ensure timely access to appropriate services and supported medicines optimisation
Better patient and carer understanding of the condition and more time spent on patient and carer education
Significant improvement in patient and carer quality of care
Enhanced clinical effectiveness, patient and carer experience and cost effectiveness, demonstrated by an independent evaluation
Cost savings
By making services more efficient and cutting hospital admissions, each ACC makes savings that not only cover their own costs but recoup an additional £29,357 every year.
Within one year of the pilot, 23.5 ACC roles saved £2.2 million in costs related to reduced hospital readmissions. Taking into account ACC staff costs, this was a net saving of £690,000 across the 19 NHS sites.4
£14 million - estimated potential net savings over two years from scaling up the Bristol pilot site model across England
Source: BHF (2015) Innovation in Practice
Improved efficiency
With the redesigned services, GPs referred patients straight to a named ACC for a one-stop-shop of assessments, diagnosis and pre-procedure counselling. Post-procedure follow-up was done at a nurse-led clinic after two weeks, rather than months later by a consultant. This allowed consultants to take on more patients.
Multidisciplinary clinics brought geneticists, cardiologists and nurses together to provide rapid-access clinics and maximise operational efficiency
Appointment of ACCs is an effective way of raising awareness of AF across the system, enhancing detection, case finding and optimal management of AF and improving efficiency and productivity at pilot sites.
Strong patient satisfaction
Thirty patients interviewed gave an overwhelmingly positive response to the ACC service. Many expressed relief at the continuity that came with a designated ACC who co-ordinated their treatment.
What are the benefits of adopting at scale?
An effective model to more efficiently enhance detection and management of AF and reduce stroke prevalence
Provides economies of scale across healthcare economies.
Tips for success
After the evaluation, BHF supported ACCs to draw up a business case for the NHS to sustain them, which was successful in 31 out of the 32 original posts.
Our current funding model is to provide a package of financial assistance for professional development, access to BHF courses, events and conferences and resources.
We now support 56 ACCs across 40 sites, whose salaries and associated costs are paid for by the NHS.
Resources and information
We submitted data from the ACC evaluation to NICE, where it has joined the Quality, Innovation, Productivity and Prevention collection as a Proven Quality and Productivity Case Study.
For more information about how ACCs could benefit your local population, contact us today.
Are you a healthcare academic or professional with a great idea for service care delivery? Find out if you’re eligible for funding with our Healthcare Innovation Fund.
How healthcare professionals, managers and planners in primary care can contribute to best practice in care for atrial fibrillation, a common cardiac arrhythmia.
To find out more, or to support British Heart Foundation’s work, please visit www.bhf.org.uk. You can speak to one of our cardiac nurses by calling our helpline on 0808 802 1234 (freephone), Monday to Friday, 9am to 5pm. For general customer service enquiries, please call 0300 330 3322, Monday to Friday, 9am to 5pm.
British Heart Foundation is a registered Charity No. 225971. Registered as a Company limited by guarantee in England & Wales No. 699547. Registered office at Greater London House, 180 Hampstead Road, London NW1 7AW. Registered as a Charity in Scotland No. SC039426