Living with congenital heart disease: Patrick's story

He will have symptoms and possible complications for the rest of his life, and may need a heart transplant.  

“I spent a lot of time in hospital as a child. I was six when I had my first heart surgery and I remember having a lot of time off school. I would pick up every bug that was going. 

I wasn’t as active or energetic as other kids my age. It was a little bit isolating, when kids my age were playing football and I couldn’t join in. 

I felt different, like I wasn’t as advanced as other kids my age, and I struggled with friendships. I had three or four close friends, but they were more active than I was, so sometimes I would have to miss things they did, like going paintballing. 

Meditation and journalling helps me worry less 

Recently I started to study counselling which I found very beneficial. I learned to live in the moment, not worrying about the past or the future. It’s helped me realise that what you’ve got is today and so you should enjoy it for what it is. I started experiencing life in a different way. 

Reminding myself of what I have overcome has made me stronger

I go to a weekly meditation class, which helps me to worry less. I have tried writing a journal of self-reflection to see how far I have come over the years. Reminding myself of all that I have overcome has made me feel stronger emotionally and mentally. 

I also started writing a gratitude journal – I would note things like waking up in the morning and being able to walk and talk and breathe. I found I had quite a lot to be grateful for. 

I’m currently volunteering for a local hospice delivering meals, and I have started my Level 4 diploma in counselling. I feel a lot happier about my life. It’s a bit daunting, but I’ve found some adventure I suppose. For me it is about giving something back. I would like to help other young people who are in a situation like mine and who are struggling.” 

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