Funding for medical research
Long-term investment in life saving research helps to drive forward the huge improvements we have seen in health and wellbeing and contributes to the UK economy.
We're the single biggest independent funder of heart and circulatory disease research in the UK, investing over £100 million each year.Although this investment has helped us make enormous progress, we cannot do it alone. UK Government, charity and industry each have a crucial role to play in ensuring the ground-breaking research taking place across the UK continues improve the lives of people living with heart and circulatory diseases.
Whilst we do not receive any funding from Government, we often fund in partnership. UK Government also supports universities to make use of charity investment for research by providing funding to cover indirect research costs, such as heating and lighting. This funding, which is known as the Charity Research Support Fund, ensures that your generous donations can be spent directly on research.
Want to find out more? Ahead of the 2015 Spending Review, we wrote 'Investing Together Changing Lives' to illustrate why investment in medical research is good for the nation’s health and wealth
Leaving the EU
We are working to ensure that research into heart and circulatory diseases continues to thrive once the UK has left the European Union.
On 23rd June 2016, the UK voted to leave the European Union. The Government is currently working out what our new relationship with the EU will look like, including for UK research. For us, there are three key areas that we would like to see prioritised to ensure that research into heart and circulatory diseases continues to thrive once the UK has left the EU:
• Lots of researchers in the UK receive EU funding to support their vital work – we’d like to ensure that UK researchers maintain the ability to apply for EU research funding and that overall investment in UK science does not decrease from the current level.
• Science is international and hugely collaborative – we’d like to see ease of movement between the UK and the EU maintained for researchers and relevant skilled professionals to ensure that researchers can continue to collaborate freely.
• From rules around clinical trials to data access, several aspects of research are currently subject to EU law – it is important that the UK research community is consulted and involved in discussions on the future of research regulation and the licensing of new medicines.
Want to find out more? Read our Chief Executive’s reflections on Science and Brexit with one year to go.
Patient data in medical research
Our medical records hold information that can help researchers make vital new life saving discoveries. To unlock the full potential of this data we need to ensure the system protects patient privacy while also enabling cutting edge research.
Our medical records hold information that can help researchers make vital new life saving discoveries. Researchers use patient data in a number of ways, from finding common factors across a large number of people that can help predict disease, to finding people that could be asked to take part in a research study. However, we will only achieve this if we’re able to give patients and the wider public confidence in the security of their data and enable them to make an informed choice about its use.
We are continuing to work with the Government, our researchers and heart patients to ensure that this balance is struck.
Want to find out more? The Understanding Patient Data initiative have loads of helpful resources to explain how and why patient data is used, who has access and how it is kept safe.
If you have any questions, please contact us at [email protected].