My darling Danny lost his life to an undetected heart condition

Lizzy with Danny and babies

Rugby league player Danny Jones died aged 29 after collapsing four minutes into an away match. 

It was then discovered that he had hypertrophic cardiomyopathy, a potentially deadly heart condition that had gone unnoticed. 

His widow Lizzie is now facing life without the husband she adored.

 

"From the first moment I knew I would marry Danny. 

On our first date we went for a meal and we hardly ate anything because we were just talking too much. We were totally soulmates. 

He was funny, an amazing personality. Such a loyal friend and husband. When our twins Phoebe and Bobby were born he was such a wonderful dad. He was just born to be a dad.

Rugby league was a huge part of his life. He played for Keighley Cougars, and it was a big commitment alongside his job.

That day he had an away match in London. But just four minutes into the game he came off the pitch because he started to feel unwell.

Then he collapsed. He had a cardiac arrest.

The match doctors did everything they could for Danny beside the pitch, and he was transferred to hospital by air ambulance.

But they couldn’t save him.

Our twins were just five months old when Danny died. Now we know Danny had an inherited condition, I will make sure they get tested.

I'm a professional singer, and after Danny died I sang the traditional Challenge Cup Final hymn, Abide with Me, at Wembley stadium. It was very a very emotional moment singing the pre-match hymn. It brought Wembley to its feet.

Lizzie at Wembley with twinsThen at the BBC Sports Personality of the Year Award I sang Danny Boy during a tribute to all the sportspeople we’d lost that year. Danny's picture was the last one to appear on a big screen behind me.

Without Danny my whole day is so hard, and singing helps me get through it. 

I’m doing what I love in the memory of someone I love. Danny was always my biggest fan, and I know that he would be so proud.

It’s become a lifeline. I’m escaping the hell of reality when I’m singing."

Other people with hypertrophic cardiomyopathy

More information

Find out more about hypertrophic cardiomyopathy or about living with the condition.

Our Genetic Information Service offers information if you or a member of your family has been diagnosed with or has died from a suspected inherited heart condition.

Help end the heartache

With your support, the Miles Frost Fund can help us end the heartache caused by hypertrophic cardiomyopathy.

Donate now