Our readers share their stories of living with heart conditions and their views on everything from the progress of medical science to cardiac rehabilitation.
Information and inspiration
I have found your magazine to be very interesting and full of knowledge that helps me to promote information and exercise to my over-50s exercise class, many with high blood pressure. Your Autumn issue included so much information on high blood pressure and how to prevent it that I have forwarded it on to my class.
Recently, I had some bad news that my father has to have heart valve surgery. This inspired me and my close friend of 50 years, Sue White, both 54 years old, to set out to walk the 68-mile coastal path on the Isle of Wight in aid of the BHF. It was the most beautiful scenery that we have seen. I also ran an exercise class where I collected £257.50, which was donated after our walk.
This week my father had a repair and replacement of two heart valves, at St George’s Hospital in Tooting – an amazing hospital. I can’t thank the staff enough for what they have done. He is doing really well.
I will continue to support your charity for the great work that you do.
Sue Scarlett, Fleet, Hampshire
The Autumn 2016 issue was my first Heart Matters, and what a delight to find, at last, a magazine that is promoting folk dancing. I went folk dancing in the YHA when I was 20 years of age, and am still doing it aged 88. I taught my wife-to-be, and could go sometimes three times a week. My wife Brenda is now in a nursing home and I was unlucky in June to have a heart attack.
Now the folk dancing season has started again, I want to get to dances, even if I have to sit one or two out and just listen to the lovely music. I hope my article will get some members interested.
George Illsley, Coventry
Flying high after heart problems
I wanted to send you this letter to give other people encouragement. I have had heart problems in the past and ended up going to A&E on three occasions.
This was three years ago and my health is improving. I lost weight, exercise at a cardio group, and go swimming and walking. I now feel healthier than I used to – so much so that I did a tandem parachute jump in Wiltshire. My age (I’m 70) wasn’t a handicap.
I hope this information will give some hope to others. It takes time, but little by little it can be achieved.
Pam Hawker, Portland
My father died in 1984, aged 66, of a heart attack. In 2005 I was first diagnosed with aortic stenosis [narrowing of a heart valve] and went on to have a new mechanical valve and single bypass. I suffered with atrial fibrillation twice since, but I’m now OK, though I still have high blood pressure.
I’ve been on a six-week cardiac rehab course supplied by the NHS, which was really good. My overall care by all concerned at the NHS has been fantastic. The operation did not worry me, I was just so grateful that this is now available, as I may have suffered the same fate as my dear dad.
Nicholas Wells, Reading
I became a survivor of a heart attack 16 years ago, which left me with some of my heart muscle dead or dying, and for the first two or three months I felt as if I would never recover my fitness.
I have now worked for the last 16 years with no sick days
I have now worked for the last 16 years with no sick days and feel better than I did in 2000. I was told at the time that, for every stone I was overweight, my heart had to work much harder. So I began a regime of three miles’ walking per day, listening to my favourite music via headphones. I’m still here and still walking.
Many thanks for Heart Matters, it’s a great source of information.
Philip Parkinson, Newcastle upon Tyne
I find Heart Matters highly informative and an enjoyable read. I like in particular the personal stories about people who have gone through heart-related issues.
In the Autumn edition, the article about Anna and Edward Symonds was intelligent and poignant. The deeply thoughtful and honest account of what must have been an incredibly traumatic experience for the Symonds family brought home to me, to some degree at least, just what this family must have gone through, and I certainly wish them all the very best for the future.
Paul Boyle, Brighton
In April 1994 I had a double bypass and was put on statins. In the course of a post-operational consultation with my surgeon some months later, he informed me that the statins I was on were having an adverse effect on my liver and switched me to a different type of statin. This did not solve the problem. As a result I was taken off statins and prescribed a cholestyramine powder, to be taken twice daily. This seems to be effective and I have suffered no ill-effects taking this and other medications all these years.
I am active and in my 90s, playing golf and visiting a gym twice weekly. It is a shame that the many critical articles about statins fail to point out that alternatives are available.
Ralph Gartenberg, Pinner, Middlesex
I was delighted to read the Star Letter from Ted Clark in your Summer 2016 issue of Heart Matters about the benefits he gets from his electrically assisted cycle. I am also a keen tricycle rider, though mine is manually powered, as the local area is quite flat and a motor isn’t necessary. I no longer have the balance for a bike, but I love my trike, which is so much easier for me to ride.
I have written many, many letters to publications about the health benefits of riding a tricycle for those who cannot handle a bike. Sadly not a single one has been published (although I’ve had many published on other topics). It does seem as if people are embarrassed to mention trikes when it comes to cycling. They aren’t just for cranks or children, but are a wonderfully safe and stable form of transport. I’ve developed severe arthritis in my hip and my trike is my lifeline.
It does seem as if people are embarrassed to mention trikes when it comes to cycling. They aren’t just for cranks or children, but are a wonderfully safe and stable form of transport.
My weekly shopping comes home on the back of my trike, and I use it for all my local errands and visits. My nearest bus stop is too far for me to walk to easily, so it’s a no-brainer. It gives me my much needed daily exercise.
Every week when I am out and about someone asks me about my trike and where they can buy one, but very few actually seem to follow this through. I’m one of just three ‘trikists’ in my town. They really do deserve to be more popular.
Thanks for a great magazine.
Andrea McCulloch, Newton Aycliffe, County Durham
I've been given a second chance
In July 2007, aged 55, I received coronary artery bypass grafting to bypass two completely blocked arteries. Seven weeks earlier I didn’t feel unwell, but thought that five days of heartburn was unusual, so went off to the doctor who organised a treadmill test and was referred for an angiogram. The consultant calmly informed me that I needed a twin (possibly triple) bypass by open heart surgery. All went well thanks to the amazing team. The recovery plan followed and I was back to work after 12 weeks.
What I’d like to say is: don’t feel afraid to try things after your operations. Keep your spirits high and surround yourself with people who will give you a boost. Finally, when you wake up every day, be grateful that you’ve been given a second chance.
Don’t feel afraid to try things after your operations. Keep your spirits high and surround yourself with people who will give you a boost.
I slowly ventured back into exercise with football, swimming and walking, then as the years went by and I felt so lucky, I started bigger tasks. These included walking the Birmingham Half Marathon with my son, being the support driver for a team undertaking the three peaks challenge in 24 hours, and this last weekend I was the support driver for my son and his mates for the coast to coast cycle route.
Keep up the good work and research, Heart Matters and BHF.
Graham Skinner, Ulverston, Cumbria
Learning from my parents
My grandfather and father had long-term heart problems. Neither was physically active, both smoked and enjoyed a stodgy east European diet. They died from heart problems even though they had heart bypass surgery and support from GPs.
I decided to learn from their experiences and changed my lifestyle about 15 years ago. I had stopped smoking years before and now changed my diet to be more Mediterranean, and also started to walk more and bought another bicycle.
I recently had a health check-up, as I retired. I was delighted to be told that, although I am now 67 years old, my heart is aged about 50 condition-wise! There are many ways to learn from your parents’ example!
Philip Silverton, Harrow
Jack Chisnall mentioned in his inspiring article (Summer 2016, page 14) that he breaks a lot of glassware due to problems with his hands. I have found using colourful plastic picnic dishes very helpful.
I am nearly 78 years old, and was born in 1938 as a very sick baby. The doctor kept telling my mum that I had asthma. I did not attend school very often and this illness went on until I was about 11 years old. Then for three years I was able to be like other girls, taking part in all the activities in school. It did not last long though. When I was 14 years old I could hardly walk or breathe properly.
I had the operation that saved my life...and I was able to have two daughters.
I was due to leave school in 1953, so we all had to see the school doctor, who detected something was wrong. For the next two months, I was going through lots of tests to determine what was wrong with me. After my mother gave the doctors all the medical information, they informed us that I had a hole in the heart! I had been born with it.
On 6 May 1953 I had the operation that saved my life. I am still here in 2016, and I was able to have two daughters. My mother was a lovely lady and naturally determined to keep me alive. I am so grateful to her, for all she did for me.
Marion Hobbins, Prestatyn, Denbighshire
I receive Heart Matters regularly and the information is always very much of interest. In the Summer issue, I found the article about Dr Moggridge’s work on heart valve research exciting and most interesting. His photograph shows a young man, confident in what he is doing – very calm and, I’m sure, a great team leader. Super!
Mrs Irene Latham, Holland-on-Sea, Essex
I have been receiving your magazine for several years now, following my father’s death from a massive heart attack.
Yesterday I had an angiogram and received the news that I will need a stent shortly. I can’t tell you enough how useful and interesting I have found the magazines. With careful eating and exercise I have reduced my cholesterol, from 6.7 to 5.1, and my weight. I will soon be on statins, which I am somewhat wary of, but the thought of resuming hiking (I am 70 by the way) without discomfort means I can also consider volunteering for the BHF.
I have not been able to donate money so I donate clothing, bric-a-brac (even TVs) and furniture as often as I can. Thank you again for all the helpful advice which I am able to pass on to my family too.
Elaine Andrews, Corfe Castle, Dorset
Thanks for making me feel good about my heart surgery scar
Thank you for the article that changed my life (Mark of strength). I had a replacement of one of my heart valves, with the best treatment at my local NHS hospital. I was very conscious of my scar, as my youngest son was getting married. It took a chaotic few months to find my outfit; as mother of the groom it had to be right.
I was still thinking about my scar until in Heart Matters there were three fabulous ladies all thinking the same as me about their scars. After reading the article, I immediately altered my ideas. The day went to plan and a brilliant time was had by all.
My weight is my next thing to tackle. I’ve just seen the eatwell plate, which will help me.
I love Heart Matters; it always gives me a boost. Just remember – wrinkles mean you laughed, grey hair means you cared, and scars mean you lived. Keep smiling.
Linda Plews, Atwick, Yorkshire
Back on a bike - at 98
I’m writing to tell you about my mother, Gladys Grimstead, who at the age of 98 is still enjoying new challenges. A couple of years ago you were kind enough to feature her on the cover of Heart Matters with an article on her love of t’ai chi.
Lately she has joined a local group called Wheels for All, which provides adapted bikes for anyone with limited mobility, from age-related loss of balance to very severe disabilities.
From the age of six, Mum always had a bicycle and was very unhappy when, at 92 years old, it was decided that it was no longer safe for her to continue riding.
With Wheels for All she is delighted to be able to take up her favourite activity again and happily rides around the local park on a bright red tricycle. She is getting faster and more adventurous every week.
It goes to show that exercise and new projects can be the secret to a long and happy life.
Gill Stallard, Portsmouth, Hampshire
Help and support
I had a real wake-up call as a 53-year-old, overweight woman with high blood pressure. I thought I could ‘get away with it’ as I’m so busy at work or am commuting.
However, having tried to come off my blood pressure medication (you should only do this with your doctor’s supervision), then my blood pressure rising to scary heights and feeling as though a heart attack was imminent, I realised I needed to take urgent action.
Dad gave me your magazine. I now see that I am not alone
That’s when dad gave me your magazine. I now see that I am not alone and that there are many similar stories out there, plus plenty of help and support.
My recent shock, coupled with your excellent Jan/Feb 2016 magazine, has given me the impetus to really make a change this year, to lose two stone and to get back into sport.
In the 80s and 90s I was a total gym-bunny, took dance classes and have always played tennis on and off, so I’m not sure how I find myself here – perhaps other middle-aged women feel the same way.
My first step will be a game of tennis with my dad, who’s fitter than me at 80. He still plays every week – a good role model, I feel!
Cheryl Gaydon Chilton, Worthing, West Sussex
Tips for health
I just wanted to say I very much enjoy Heart Matters. I was born with a weak heart and was quite obese when I was younger. This made everyday struggles a bit difficult. Reading your magazine has given me the confidence to do something about it.
I’ve taken up a lot of exercise and do activities such as cycling, football, swimming and I am also a member of Parkrun. The aim is to improve my health and lose some weight. I have lost weight already, so I guess I am on track. Thank you for your advice and useful tips.
Adnan Mirza, Shipley, Bradford
Last year I began subscribing to Heart Matters. After reading about the health benefits of growing fruit and vegetables, my husband and I decided to start growing our own produce.
We have experienced many benefits from the fresh air and exercise. Imagine our surprise when we dug up this small heart-shaped potato, which seemed to be symbolic of our new healthy eating and exercise regime.
Christine Cardy, Felixstowe, Suffolk
Alive and well
I was interested in the story of Rocco Parsley in Alive, in Heart Matters Jan/Feb 2016 issue. My son had exactly the same condition – transposition of the great arteries. The surgery was called the Mustard Operation in 1980 and they had only been doing it for about 15 years.
They only found out he had this condition a few hours after the birth when he went bluey-purple. He was taken to Myrtle Street Children’s Hospital, Liverpool, the day he was born, but he had to wait till he was 14 months old for his heart surgery.
The operation hadn’t been perfected and was done the opposite way around. It can’t be done again, and my son, now 36, still has check-ups in Liverpool. It is good to know things have moved on, as he was so poorly during that time.
Barbara Nuttall, Bolton, Lancs
Following your feature on walking (Walk this way, Jan/Feb 2016), I wanted to further endorse its value. I suffer from high blood pressure and have been taking medication for it since 2003 at age 53.
At my annual review, my GP will adjust the medication if needed, and a couple of years ago we discussed statins. At that time I had high cholesterol. I tried dieting, but that didn’t work very well.
However, just over a year ago my wife and I decided we’d get another dog – we used to have a black labrador – and we got a German shorthaired pointer. These dogs need a lot of exercise, at least three walks a day – sometimes we’d walk up to eight miles in a single session, and he still wasn’t tired!
Over the last year my cholesterol has gone down from 5.9 to 5.49, and my blood pressure has also dropped a bit and is much more stable over a 24-hour period at 113/78.
Walking is an excellent exercise, and my experience shows the benefits. I’d be delighted if others were to benefit in the same way.
Paul Craddock, St Albans, Herts
I was delighted to see that geocaching was suggested as a good walking activity. I can thoroughly recommend this as it provides not only walking exercise, but an interesting hobby.
You only need to walk as far as is comfortable, and as you are stopping and starting, it’s not too strenuous. There is excitement in searching and finding, and the walks take you to many truly interesting places.
Ruth Herd, West Linton, Scotland
The big thank you
I had to have an ICD fitted... I turned to your Heart Matters Helpline in desperation. I can’t thank you enough. I am feeling a lot better now and I know you are on the end of the phone if I need you.
Andrea Bristow, Colyton, Devon
Andrew McDonald, our Jan/Feb 2016 cover star, lost confidence when he was told he had atrial fibrillation, but a lifelong dream of flying a Spitfire got him back on track. Here are your thoughts from Facebook:
- I had a massive heart attack on 29 September. I’m doing well, but mentally can’t get my head around the fact it happened. After reading about others, I don’t feel quite so alone. Good luck and God bless you all. Brenda Sumner
- I experienced exactly the same thing, and also I have an enlarged heart. But I keep going somehow and I work as a gardener and swim half a mile or more in my local pool every weekday morning (I’m 49). So let’s keep going old son! Tony Smith
We also shared Maria Davey’s story. Born with tetralogy of Fallot, she took up swimming to get in shape for surgery. You said:
- Well done Maria, you should be super proud of yourself!
- I had transposition of the great arteries when born, surgery at five months, open heart surgery at eight months and then again in 2007 with a pacemaker put in too. I’m massively proud of my war wounds! I have gone on to have my own little girl who is completely healthy. I’m also a keen swimmer, doing the 5K swimathon in March, can’t wait! Hanna Coburn
- My four-year-old son is facing his second heart surgery so reading this is inspirational! Gavin Hookham
- Well done! This gives me hope for my tetralogy of Fallot baby. All I worry about is what he won’t do – I forget the amazing things he probably will do. Kelly-Marie Smith-Milson