The journey from child to adult care

The journey from child to adult care

When you make the journey from child to adult care it’s known as ‘transition’. The journey is different for everyone, but it always helps to have some clear information and support along the way.

Transition: Your Journey 

Transition is all about helping you develop the skills, confidence and independence to manage your care as an adult. This eases your journey from your paediatric clinic or hospital to your adult clinic or hospital.

The journey is different for everyone. There is no right or wrong way to make your journey from child to adult care. It’s all about what works for you.

Alongside 6 young heart patients we have produced Transition: Your Journey. This film will help guide you through the transition process and answer any questions you may have. 

Your life, your decisions

The transition from child to adult care isn’t only about what happens in your hospital or clinic. It’s about your whole journey into adulthood and all the things you need to start thinking about along the way, like:

  • Going to university
  • Starting a career
  • Going travelling 
  • Learning to drive
  • Starting relationships

These are important rites of passage and everyone’s experience is different, but if you have a heart condition you may feel a bit anxious about taking some of these steps. It’s natural to feel overwhelmed. 

Everyone has ups and downs as they’re growing up. Many of them have nothing to do with having a heart condition. But having a heart condition sometimes brings extra stress that other people don’t experience. 

To help you, we’ve broken down the all the important information you will need to know when thinking about your next big decision. 

After all, it's your journey! 

Image of BHF transition boxPicture Your Journey

If you're making the journey from child to adult care, this resource pack will help you to keep your medical contacts, appointments and healthcare information together in one place. The box contains three booklets with information about transitioning:

  • My Transition
  • My Life 
  • My Inspiration

Best of all, the box and each booklet is customisable, so you can put your own photo across the front to make them look however you like.


Going to Uni

Six young people talk about the challenges of going to university and how having a heart condition shouldn't stop you from having a positive experience.

Moving on

Sinead talks to young heart patients about how you can prepare to move out of home for the first time.

Do you want to meet other young people like you?

Are you over 13 and living with a heart condition in the UK? Join one of our young peoples support programmes.

They are a great way to get help and support and meet other young heart patients at great events.

Find out more