Rosanna Ogden – 3rd party fundraiser
Doing it your own way – Rosanna Ogden
fundraising her own way for the BHF, written by her mother Sanam
Rosanna went for her first GP check-up at 6 weeks
old. However, whilst being checked the doctor said:
“something doesn’t sound right with her breathing”. We were advised
to get this checked out so we booked a scan.
During the scan they found there was something wrong but were
not sure exactly what, so they sent us the same day to the
specialist team at Manchester Children's hospital. Whilst there
they said this is a rare case...and they started to wire her up and
telling us you can’t go home, she has to stay. That night they sent
Rosanna who was all wired up and cradled in my arms in an ambulance
to Liverpool Alder Hey.
She went for her life saving surgery two days
later at 3:00pm. After an 8 hour operation we've received a
phone call that she had been moved to the Intensive care unit and
we could come and see her. She stayed that night in ICU and 3 days
after she came home, everything happened within a week.
Rosanna's diagnosis was a rare tumour called
Rhabdomyoma within the heart
muscle. This tumour usually regresses as children grow,
but if it is at a site and causes obstruction of blood flow, it can
be life threatening. For Rosanna, the tumour was coming out of the
muscle separating the two pumping chambers of the heart called
ventricles. It was like a dumbbell and one end of the dumbbell was
popping in and out of her aortic valve causing obstruction of blood
flow to her aorta. It was a significant obstruction and the reason
Rosanna had early surgery was because this could have been
potentially life threatening.
We found out about the work of the BHF through the
Heart Matters magazine.
When I started reading all about heart health and saw there were
some events coming up, I thought that Rosanna could take part and
make a splash at the next swimming event, the BHF Camberley
was a perfect fit, a girl with a heart condition who loves
swimming, what better way to raise money for the BHF. We know how
unusual her condition is and how far she has come that’s why we set
up a justgiving
page and have raised nearly £1030.
raising money for the BHF we hope this will help to look after and
care for more people with a heart condition. Rosanna’s swimming is
our way of doing something for charity that helps vulnerable hearts
like Rosanna’s. Her story is quite amazing; she is a
Miracle underwater swimmer girl.
As parents your worst fear is to hear something is wrong with
your child. You think it is the end of the world and we did. It’s
only, now seeing her progress, we understand how amazing the work
of the BHF is.
We feel supporting the BHF is a positive way to make an impact,
and it makes us happy. I would 100% recommend it to everybody, and
whenever I can, I do!