It’s second time lucky for Jason, as he prepares for the London to Brighton Bike Ride, after a heart disease diagnosis forced him to pull out of the event in 2011.
“What was meant to be a relaxing family holiday in Egypt became a trip that changed my life completely. After collapsing, I decided to be on the safe side and go to the hospital as soon as I came home.
“I really didn’t expect anything to be seriously wrong – I was young and healthy, with my whole life ahead of me.
"But after a number of visits to several different hospitals, I was eventually diagnosed with Arrhythmogenic Right Ventricular Cardiomyopathy (ARVC), a progressive disease of the heart muscle, in November 2010.
“Although I had suffered from palpitations for most of my life, the diagnosis came as a complete shock, especially as I was rushed into the operating theatre the next day to have an ICD fitted.
"This device inside me is keeping me going more than people would ever know – it’s saved my life. But there is no cure for what I have, an outlook that is often hard to face both emotionally and physically.
When people ask me why I signed up, I have only one answer - because the charity’s vital work and dedication to life saving research means I don’t have to give up hope while living with an incurable disease.
“I signed up to do the London to Brighton Bike Ride a year after my diagnosis, as a way of setting myself a challenge. Unfortunately my doctor said I wasn’t well enough to take part, but that didn’t stop me. I carried on fundraising and five years later, I am finally getting on the saddle!
“When people ask me why I signed up, I have only one answer - because the charity’s vital work and dedication to life saving research means I don’t have to give up hope while living with an incurable disease. By supporting the BHF through fundraising, I’m proud to say I am helping the BHF find a cure for what I and many others have to face every day during this unforeseen chapter of our lives.”
ARVC is a rare disease of the heart muscle, which is caused by a change or mutation in one or more genes.
ARVC can cause abnormal heart rhythms and your heart muscle gradually stretches and thins, meaning your heart doesn’t pump blood around your body properly. The condition is usually progressive, which means that it will get worse over time.
We're constantly looking for new ways to improve diagnosis and treatment for people affected by diseases like ARVC.
To help us fund our vital research, you can sponsor Jason via his JustGiving page or take part in the event yourself.
Sign up for 2017