Deb's cardiomyopathy


Deb Coleman has learnt how to cope with cardiomyopathy.

Deb suffered a cardiac arrest during the birth of her second son, Cameron. She had to be resuscitated, and initially the doctors thought only her son would survive.

Sudden cardiac arrest during birth

She was put on life support and in hospital for nearly a month, but made a recovery despite the odds.

She has since been diagnosed as having dilated cardiomyopathy.

I am very lucky in the fact that cardiomyopathy doesn't have a big impact on my life.

“When I had Cameron, I had a caesarean section and arrested as soon as I was injected with the medication. It was only then that anyone realised that I might have a problem with my heart.”

That experience had a big impact on her outlook on life but she’s not letting her condition hold her back. When not doing charity bike rides, running a busy family home or singing, she has a full time job as a photojournalist and professional photographer.

“It’s coming up to seventeen years since I had my cardiac arrest. I don’t really think about it, taking my medication is just like brushing your teeth. Something you do every day.”


What is cardiomyopathy?

Cardiomyopathy is a disease of the heart muscle. It can run in families and can affect one or several members of the family. There are three main types of inherited cardiomyopathy and one type caused by extreme stress.

People living with cardiomyopathy

The individuals listed below are also currently living with cardiomyopathy.

Althea's dilated cardiomyopathy
Caroline's inherited heart condition
Helen's ARVC

Support life saving heart research

The cardiomyopathy research we fund has helped push the boundaries of our understanding of genetics and given us tools we can use to help to find people at risk. Researchers Bill McKenna and BHF Professor Hugh Watkins paved the way, finding genetic mutations that cause the most common type of cardiomyopathy.

Their work has led to a successful pilot of NHS genetic screening that's now being rolled out across the UK. That wouldn't be possible without your donations towards our heart research. Consider giving us a donation to fight for every heartbeat today.