When I was born Mum wanted to take me home but she couldn’t because I had a heart condition the doctors didn’t see very often.
I had my first operation when I was ten days old.
It took seven hours and Mum and Dad had a shock because I came out with my chest still open because my heart and lungs had swelled up.
I had another operation at four and another at six.
I don’t like it when I have to keep having more operations, but I am dealing with it. I go and see Nell the psychologist at the hospital who helps me to not feel so frightened.
I know I have a ‘special heart’ and I want this operation. I want to be able to play football and to be faster than my younger brother at swimming.
Professor Massimo Caputo will be doing my operation. He has done all my operations. He said that I will be in surgery from 9am until 4pm. Mum says to think of it like a whole school day.
Sometimes I wish I had a normal heart like my brother and sister. But I know other kids like me and I’m not alone.
Me and my family have been filming the days up to my heart operation so that people can see what it’s like to have a ‘special heart’ like me.
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Calum was born with Truncus Arteriosus. You can help us fund life saving heart disease research that can have a huge impact on the lives of children like Calum.