Amy's hole in the heart

Amy was born with a heart condition, atrial septal defect, also known as a hole in the heart.

Always tired and out of breath

Amy's heart condition wasn’t picked up until she was 13. For years she was known as ‘lazy Amy’ – always tired, always sleeping, out of breath, and never knowing why.

Finally finding out why was a massive relief. The operation she had at 14 was successful, and though she’s been left with a scar she doesn’t have to take medication and has said goodbye to lazy Amy – hopefully forever.



What is an atrial septal defect?

Atrial septal defect is a form of congenital heart disease, which is a heart condition or defect that develops in the womb. Some heart conditions are due to faulty genes or chromosomes, but often we don't understand why the heart hasn't developed normally.

Other people with congenital heart disease

Here are more stories of people living with varying forms of congenital heart disease:

Riley's congenital heart disease
Anette's heart defect

Support life saving heart research

In the 1950s, around eight out of ten babies with complex congenital heart conditions died before their first birthday. Thanks to advances in treatment and care, today more than eight out of ten babies with congenital heart disease grow to be adults. BHF Professor Shoumo Bhattacharya investigates the genetics behind why some babies are born with heart problems with the goal of preventing congenital heart problems all together. Your donations help fund Professor Bhattacharya and other top scientists all over the UK working to beat heart disease.