Cardiac genetics nurses
Genetic cardiac specialist nurses facilitate
the care of patients with inherited heart conditions.
They do this through the provision of support
and information for patients and their families, by developing
pathways into specialist services and acting as an interface
between different professional teams.
Tootie is a genetic cardiac
specialist nurse based in London. She has been a nurse for 17
years and BHF nurse for nearly four years.
Tootie holds three clinics each week.
Some will be lucky and have their results confirmed as
negative. Others will learn they have inherited a heart
condition or, in the severest of cases, are at risk of sudden
“It gets very emotional. I don’t think
I’ve ever had a clinic where nobody has cried. I let patients
express their stress and anxiety, and be there for them. We and the
BHF can give them resources to cope.
“The funds from the BHF mean that I am able to help families in
a very difficult time of their lives. Instead of taking on
negative coping habits, I help them to channel their emotions to
create positive health changes.
"These can prevent death and illness and allow
people to regain their rightful place in the family and
society. It is satisfying to see someone who has been
emotionally bogged down thriving again.”
"I saw my genetic cardiac nurse for
the first time and my experience was good. I wish a lot more people
were like Tootie. She was very kind to me and my family. I
only wish I could see a nurse like her more often. I want to
be seen as a person and not just a number."