Research has shown that
with proper treatment and follow-up, most people with ARVC are able
to control their symptoms and live a normal life.
Most people with ARVC are at low risk of
sudden cardiac death. However, there are
certain times – known as ‘hot phases’ – when the
disease becomes more active and this increases the risk of sudden
cardiac death. Unexplained dizzy spells, sustained palpitations, or
blackouts can be signs of a hot phase.
If you experience any of these symptoms,
you should see your doctor immediately. Hot phases
may come and go, but they could be a sign that the disease is
progressing. This is why regular monitoring and follow-up with your
doctor are important. If you are at high risk of sudden cardiac
death, your doctor may advise that you have an ICD fitted.
You may have to make some changes to manage
your symptoms, but you should be able to drive an ordinary
car and continue to work for example. You
will not be able to drive an HGV or commercial passenger vehicle
however and there may be some restrictions on your employment
depending on your type of work. For more information and advice
about living with arrhythmogenic right ventricular cardiomyopathy,
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