Our work

We aim to improve the quality of life of children and young people living with CoHD  by:

  • Providing information
  • Giving support that includes providing medical equipment, respite breaks and financial help
  • Promoting effective services for their care and treatment
  • Campaigning to improve the clinical and social care of those affected by CoHD
  • Raising awareness of the needs of children and young people with heart conditions and their families. 

Priorities

Children's Heart Federation campaigns for improvements in health, social and educational provision for children and young people with heart conditions.

Our key priorities are:

•  Raising awareness of the needs of children and young people with congenital heart disease (CoHD), including the recognition of the difference between congenital and coronary heart disease

•  Improving antenatal screening, diagnosis and audit of congenital heart disease in order to reduce mortality and improve the quality of life of CoHD babies. This should include the introduction of national screening standards for CoHD to address the current variations

•  Ensuring that children and young people with congenital heart disease have access to safe and sustainable services within specialist centres which can properly meet the complex needs of these patients

•  Promoting better transition of care from paediatric to adult services for CoHD patients, through the establishment of appropriate transition clinics and improved coordination of care between paediatric and adult care teams

•  Create a national structure for GUCH (grown up congenital heart) services to ensure that GUCH patients have access to properly resourced and staffed specialist care in geographically appropriate centres, taking into account demand and critical mass.

Web: www.chfed.org.uk

Children's Heart Federation, 2-4 Great Eastern Street, London EC2A 3NW

Tel: 020 7422 0630

Infoline: 0808 808 5000

Email: info@chfed.org.uk