Cardiomyopathy Association
Provide information and support to people and their families affected by cardiomyopathy.
Raise awareness of cardiomyopathy, and provide information and education to health professionals.
Cardiomyopathy
Paul Roome tells his story,
“Running was a large part of my life. I went on early morning runs with my friends before work, did club runs and had my marathon time down to 3hrs 11mins.
After a run in 2007 I felt light-headed and soon afterwards I passed out
As a family doctor I knew this wasn't normal. I went to a cardiologist for checks. These showed I had signs of cardiomyopathy.
I was put on drugs and given an internal defibrillator. It was a scary time but fortunately I came across the Cardiomyopathy Association (CMA). Without its help I would have been lost.
I learnt that people can live a full life with the condition if they get proper treatment.
I went to a CMA information day and it helped immensely to be able to speak to specialist doctors and hear stories of others with the condition and realise I'm not alone.
The advice has helped me to start enjoying life again. I joined friends walking the Cleveland Way in October, have been on walking trips to the Lake District and Yorkshire with family and friends
With the help of the CMA I feel positive about the future.”
Priorities
- To inform people and families affected by cardiomyopathy
- To provide support to those affected and promote independence
- To educate those responsible for providing care to cardiomyopathy patients and families
- To support and enhance clinical services for cardiomyopathy patients
- To campaign for increase availability of specialist cardiology and genetic evaluation in the UK